Toby’s Feb 2017 update

Since our last update it’s been an emotional rollercoaster, I’ll tell you why in chronological order as it demonstrates what we go through on a day by day basis. It’s a long post, bear with me if you can. Buggy The first week started well with a great appointment with...

Toby’s Jan 2017 update

Never good to start with an apology but it turns out people do read these updates and noticed the glaring fact that I didn’t write one at the end of December, sorry! No excuses, life ran away with us and before I know it the tree was down, decorations packed away, the...

Toby’s November 2016 update

It’s been an emotional month as there’s been lots of reminders that Toby is different, from spending his birthday in hospital, not going to friends’ birthday parties and an appointment to discuss his first wheelchair. Add in a higher than average number of seizures...

Toby’s October 2016 update

This month it’s been all about food! Sadly, Toby still isn’t interested in food at all but prompted by a couple of people who care for him we’ve been exploring the ‘blended diet’ which kinda does what it says on the tin, blended food pushed through his Mini Button...

Toby’s Story

Our beautiful baby boy was born on the 22nd November 2013. It was a fairly rocky but ‘normal’ start with an emergency caesarean followed by a scare in week 2 when he lost too much weight and ended up in hospital under a UV lamp to treat jaundice. The next 8 weeks were...