Toby’s August update

It’s been a pretty good month and it feels nice to write that. There have been some lows, there always is but there’s been a lot of highs which makes everything feel better. We started August with Toby recovering nicely from his PEG operation and us getting used to...

Living on edge

It’s been a tough weekend. Toby had a seizure in the bath on Friday morning and then another Friday evening after having his hair cut, he also had one on Saturday evening. They were all under 1.5mins but on each occasion he stopped breathing and went very blue...

Down to earth with a bump

It’s been a great few days, lots of people have been doing amazing things to raise money for Toby’s Trust, we’ve got to know new people and in general Toby has been on the best form he’s ever been. He has started to cruise a lot, he’s...

Toby’s July update

It always amazes me when I write these updates how much goes on in a month, it often feels like it flies and if we blink we miss it but taking the time to reflect on some of the memorable things that happen is really cathartic and reminds us of all the positive things...