by Tim O'Grady | Feb 27, 2015 | Updates
Blink and you miss it, that’s what February felt like for us! Toby’s seizures have been fairly consistent with one to three 2 to 5 minute seizures most days, difficult but more ‘manageable’ (it’s all relative) at home as we didn’t need to call an ambulance although he...
by Tim O'Grady | Jan 30, 2015 | Updates
A new year and a change for Toby. Toby’s seizure pattern has changed and rather than lasting an hour or more they are now 1-5 mins which is good as he doesn’t require the rescue medications, ambulances or trips to hospital however it’s a double edged sword as the...
by Tim O'Grady | Jan 16, 2015 | News & Events
We’ve talked about our visits to Helen House before and how amazing the whole place is, they picked us up out of a dark deep hole in December and got us on our feet again so to be back so soon for three nights of respite was great as this time it was very...
by Tim O'Grady | Jan 1, 2015 | Updates
We ended November and entered December in a desperate place, all of Toby’s seizures were lasting over an hour and were increasing in their frequency and often occurring during the night. After a weekend of hundreds of partial seizures and a day where we administered...
by Tim O'Grady | Dec 9, 2014 | Updates
November was another month of highs and lows for us, the main high being Toby’s birthday! Where has the past year gone? Difficult to believe that our little boy has been with us for a year already and what a year it has been. Over 100 ambulances, over 20...
