by Tim O'Grady | Aug 28, 2014 | Updates
I know this site is pretty new but Kim and I wanted to ensure we carried on keeping it up to date so what better way than a monthly progress report of sorts? August has been, relatively, a lot better for Toby. We had nearly two months when he was having major seizures...
by Tim O'Grady | Jul 31, 2014 | Dravet Links and Info
http://www.mumsnet.com/special-needs/benefits/loans-and-grants Under the Welfare Reform Act 2012, the Discretionary Social Fund, which used to provide community care grants, budgeting loans and crisis loans, was abolished. The Department of Work and Pensions (DWP)...
by Tim O'Grady | Jul 30, 2014 | Dravet Links and Info
Article on how cannaboid derivatives have helped one family http://edition.cnn.com/2013/08/07/health/charlotte-child-medical-marijuana/?c=&page=8 (CNN) — By most standards Matt and Paige Figi were living the American dream. They met at Colorado State...
by Tim O'Grady | Jul 30, 2014 | Dravet Links and Info
GWPharma released the following press release in June http://ir.gwpharm.com/releasedetail.cfm?ReleaseID=855006 June 17, 2014 GW Pharmaceuticals Announces Physician Reports of Epidiolex(R) Treatment Effect in Children and Young Adults With Treatment-Resistant...
by Tim O'Grady | Jul 30, 2014 | Dravet Links and Info
A recent Facebook post asked for good companies to contact who insure people with epilepsy, the two below seemed the most popular: http://www.familyfund.org.uk/...
