by Tim O'Grady | Jan 1, 2018 | Updates
Happy New Year to you and all your family, once again, thanks for keeping up with us over the last year, it’s great to know you’re there. Dare I say it but December has been a great month for Tobes which considering how ill he was at the end of November when he was...
by Tim O'Grady | Dec 14, 2017 | Dravet - a lesson in personal development
Kim’s written another article for their team’s blog, it’s brilliant: With Christmas nearly upon us, it seems a good time of year to think about kindness and its importance in making a difference to other people’s lives as well as making ourselves...
by Tim O'Grady | Dec 3, 2017 | Updates
I really don’t know where to start with this month’s update, so much has happened and so many people have been incredibly kind and generous. Let’s start with the not so great stuff, for the last week and a bit Toby’s had a really bad cold and chest infection, he’s...
by Tim O'Grady | Nov 13, 2017 | Updates
I realise I’ve not written an October update and apologies for that, Life’s been a little tough over the last few weeks as Toby’s seizures have got worse. The fully convulsive ‘tonic clonic’ seizures have increased in frequency and duration and seem to be impacting...
by Tim O'Grady | Oct 1, 2017 | Updates
We’re very lucky that people often ask “How’s Toby?” but we find it such a difficult question to answer, right now, he is having a fully convulsive seizure every day, which means as well as the seizure he’s unconscious for 40 mins afterwards, and he has a...
