by Tim O'Grady | Sep 29, 2017 | Dravet - a lesson in personal development
Another blog that Kim wrote for her team at work, again proving that all life experiences are just as valid at work as at home. The biggest challenge I face each day is finding the energy to keep all the plates spinning. Having a severely ill child is relentless....
by Tim O'Grady | Sep 1, 2017 | Updates
I’m going to start this update with thanks, thanks to all of you who read this and support us in so many ways. Toby’s all terrain buggy is suffering with overuse and about to give up carrying him, his oxygen and rescue meds but thanks to your generosity we have Toby’s...
by Tim O'Grady | Jul 31, 2017 | Updates
Back in April we met with Toby’s neurologist and agreed to reduce one of his medications, we didn’t have great seizure control and all the meds have side effects, very broadly, one hinders his mobility, one his speech and one his eating, to reduce any of these side...
by Tim O'Grady | Jul 4, 2017 | Updates
Through June we’ve continued to reduce Toby’s clobazam, one of the meds that helps ‘calm’ his body and brain down to reduce seizures. It’s a stronger version of Valium, so you can imagine what that does to him. By reducing it we were hoping to see a more alert,...
by Tim O'Grady | Jun 22, 2017 | Dravet - a lesson in personal development
In a recent coaching session Kim was introduced to a simple but powerful tool called CIA – Control, Influence and Accept, a technique for dealing with life’s frustrations and the events that cause them, this is a blog post she wrote to demonstrate the power of...
