by Tim O'Grady | Oct 13, 2019 | News & Events, Updates
September was a busy month for all of us and, as ever, a double edged sword of great stuff and some really tough stuff. Tobes was back at school and loved seeing all his class mates and the brilliant teaching staff that do so much for all the kids at Redway. He was...
by Tim O'Grady | Jul 3, 2016 | News & Events, Updates
Another month gone and sadly it’s not getting easier, Toby is still having around 100 seizures a day lasting from one to ten seconds each which seem to be causing him more distress and pain as he’s crying out, he’s also having fully convulsive...
by Tim O'Grady | May 31, 2016 | News & Events, Updates
Sorry to say May has been tough for us and rubbish for Toby. We started May with a trip to Helen House that we were really looking forward to as my Mum & Dad had kindly offered to stay with Toby in the hospice while we had a couple of nights away in nearby...
by Tim O'Grady | Apr 30, 2016 | News & Events, Updates
Wow, what a month. I’m sure you are all the same but time seems to be flying by and writing all this stuff down just highlights how much is going on when it feels like the weeks pass in a blur. The month started on a high, we started having respite for a few hours on...
by Tim O'Grady | Apr 1, 2016 | News & Events, Updates
We started March in a brilliant way. Toby had a physio session at the hospital booked and we decided to both take him as he wasn’t on brilliant form and it’s always easier to cope when we’re together. Toby was as keen as ever to get into the waiting room where they...
by Tim O'Grady | Mar 2, 2016 | News & Events, Updates
Where did February go? Blink and you missed it! In part I think it went so fast for us as we were so busy with lots going on that it doesn’t feel like we stop, much the same as most of you reading this I’m sure. I always feel an element of guilt writing these posts,...
