by Tim O'Grady | Jul 3, 2015 | News & Events
What a month, talk about highs and lows! About as low as it gets… Toby started June in Intensive Care in Southampton, on a ventilator and in an induced coma after two prolonged seizures. I know most of you will have read the daily updates we posted at the time so...
by Tim O'Grady | May 2, 2015 | News & Events, Updates
Dare I say it but April hasn’t been too bad for Toby, although I’m touching wood as I write this. Whilst he hasn’t had any prolonged seizures this month he does tend to have at least one or two short tonic clonic seizure every other day. They usually last less than...
by Tim O'Grady | Jan 16, 2015 | News & Events
We’ve talked about our visits to Helen House before and how amazing the whole place is, they picked us up out of a dark deep hole in December and got us on our feet again so to be back so soon for three nights of respite was great as this time it was very...
by Tim O'Grady | Nov 2, 2014 | News & Events
A good ‘Dravet’ friend of ours Rebecca had told us about a charity called Brainwave that works with children with neurological issues to create physical and mental development plans, her daughter, the gorgeous Neve has regular contact with Brainwave and it...
by Tim O'Grady | Oct 4, 2014 | News & Events, Updates
September has been a mixed bag for Toby and us on many fronts. We’ve been trying to get Toby into a nursery so that he can be around other children to interact and learn like most other children do. Sadly due to his condition it’s a lot harder than you...
