Average

I’ve always been average. Pretty good a lots of things but not great at any of them, straight C’s that’s me and I’m quite happy with that. So when people say we’re amazing I can’t quite square it away with being average, I...

Living on edge

It’s been a tough weekend. Toby had a seizure in the bath on Friday morning and then another Friday evening after having his hair cut, he also had one on Saturday evening. They were all under 1.5mins but on each occasion he stopped breathing and went very blue...

Down to earth with a bump

It’s been a great few days, lots of people have been doing amazing things to raise money for Toby’s Trust, we’ve got to know new people and in general Toby has been on the best form he’s ever been. He has started to cruise a lot, he’s...

Privacy

The arrival of a new baby in any house is going to mean an increase of visitors, from well wishers to doting grandparents and we experienced nothing less when Toby came onto the scene, what is different that other families is that the influx of visitors to the house...

What if?

Yesterday a link on Facebook caught my eye and I couldn’t help but click and read ‘Do you know how exhausting special needs parenting is?’ – kind of sums up how I feel a lot of the time but it wasn’t until I got to the end that I realised...