by Tim O'Grady | Feb 8, 2023 | Updates
The last year seemed to have passed in a flash, I promise I’ll get better at posting these updates! There were some big milestones for Toby, from continuing the new genetic treatment through to swimming in the sea, playing his uncle’s puppy and getting...
by Tim O'Grady | Jan 4, 2022 | Updates
Happy new year! Well, it’s really about time we updated this page, so many of you have asked about Toby which is lovely so here goes with a latest missive. The last couple of years have been weird for everyone, at the height of the lockdowns life was both challenging...
by Tim O'Grady | Jul 5, 2020 | Updates
The eagle eyed of you will have noticed that there was no update last month, as I am sure it has been for everyone, lockdown has continued to be tough and quite frankly I’m not sure where the time has gone. As we recovered from Covid-19 (confirmed antibody tests on...
by Tim O'Grady | May 7, 2020 | Updates
At the end of March we all became ill with symptoms of Covid-19, the first few days were a blur as we tried to look after a seizing Toby who we’d deliberately knocked out with lots of drugs to try and stay out of hospital, all the while we felt rubbish too with...
by Tim O'Grady | Apr 5, 2020 | Updates
March has been weird for all of us hasn’t it? For us the month ended in the worst way as we’ve all been pretty poorly which resulted in Toby having the worst day of seizures he’s had for years. Like everyone in mid-March we were keeping an eye on the...
by Tim O'Grady | Mar 4, 2020 | Updates
February seems to have disappeared in the blink of an eye helped no doubt by having a lovely week away as a family in Southwold. Our half term holiday didn’t start well unfortunately with Toby having a seizure at school not long before we collected and then another...
