by Tim O'Grady | Oct 1, 2015 | News & Events, Updates
Apologies but I can’t open another update on a positive note, every time I write about good stuff that has happened recently life throws a curve ball and it all goes a bit pear shaped. After I’d posted the August update we had a good weekend with Toby although Kim was...
by Tim O'Grady | Sep 4, 2015 | News & Events, Updates
It’s been a pretty good month and it feels nice to write that. There have been some lows, there always is but there’s been a lot of highs which makes everything feel better. We started August with Toby recovering nicely from his PEG operation and us getting used to...
by Tim O'Grady | Aug 2, 2015 | News & Events, Updates
It always amazes me when I write these updates how much goes on in a month, it often feels like it flies and if we blink we miss it but taking the time to reflect on some of the memorable things that happen is really cathartic and reminds us of all the positive things...
by Tim O'Grady | May 29, 2015 | Updates
It’s my own fault, I know it it. Starting off last months update with ‘it’s been a good month’ was tempting fate just too much. On Friday the 1st May we had a long meeting with Social Worker Sue and a lady called Gill from the Continuing Care...
by Tim O'Grady | May 2, 2015 | News & Events, Updates
Dare I say it but April hasn’t been too bad for Toby, although I’m touching wood as I write this. Whilst he hasn’t had any prolonged seizures this month he does tend to have at least one or two short tonic clonic seizure every other day. They usually last less than...
by Tim O'Grady | Apr 2, 2015 | Updates
Brace yourself, it’s a long one, get a cuppa or better still a glass of wine then sit back and read on…. March didn’t start well for us, we all had terrible colds with hacking coughs and I was still recovering from my hernia operation and couldn’t lift...
