by Tim O'Grady | Feb 27, 2015 | Updates
Blink and you miss it, that’s what February felt like for us! Toby’s seizures have been fairly consistent with one to three 2 to 5 minute seizures most days, difficult but more ‘manageable’ (it’s all relative) at home as we didn’t need to call an ambulance although he...
by Tim O'Grady | Jan 30, 2015 | Updates
A new year and a change for Toby. Toby’s seizure pattern has changed and rather than lasting an hour or more they are now 1-5 mins which is good as he doesn’t require the rescue medications, ambulances or trips to hospital however it’s a double edged sword as the...
by Tim O'Grady | Jan 1, 2015 | Updates
We ended November and entered December in a desperate place, all of Toby’s seizures were lasting over an hour and were increasing in their frequency and often occurring during the night. After a weekend of hundreds of partial seizures and a day where we administered...
by Tim O'Grady | Dec 9, 2014 | Updates
November was another month of highs and lows for us, the main high being Toby’s birthday! Where has the past year gone? Difficult to believe that our little boy has been with us for a year already and what a year it has been. Over 100 ambulances, over 20...
by Tim O'Grady | Nov 4, 2014 | Updates
What a month! Whilst the number of seizures Toby has had has reduced the length and severity increased dramatically. The poor little boy had 3 seizures (one every seven days almost) that lasted over an hour and several around 20mins, the longest being 71 minutes which...
by Tim O'Grady | Oct 4, 2014 | News & Events, Updates
September has been a mixed bag for Toby and us on many fronts. We’ve been trying to get Toby into a nursery so that he can be around other children to interact and learn like most other children do. Sadly due to his condition it’s a lot harder than you...
