by Tim O'Grady | Jun 2, 2017 | Updates
Dare I write this? It’s been a good month….deep breath, everyone still ok? Toby has still had hundreds of seizures but as a family, and a couple, we’ve cracked on and done lots of things, from Kim’s special birthday weekend away in the Cotswolds while Tobes was in...
by Tim O'Grady | May 2, 2017 | Updates
Apologies for the late update, we’ve been away celebrating Kim’s 40th whilst Toby had fun in Helen House. We dropped him off on Friday and it was lovely to see how happy he was there and how genuinely pleased for us all the staff were, they see it as a...
by Tim O'Grady | Apr 1, 2017 | Updates
I’ll be the first to admit that last month was a little doom and gloom so having a positive start to March was what we all needed. My cousin and family came for the weekend and we were a little nervous, Tobes hadn’t been on good form and maybe a couple of kids doing...
by Tim O'Grady | Feb 27, 2017 | Updates
Since our last update it’s been an emotional rollercoaster, I’ll tell you why in chronological order as it demonstrates what we go through on a day by day basis. It’s a long post, bear with me if you can. Buggy The first week started well with a great appointment with...
by Tim O'Grady | Jan 29, 2017 | Updates
Never good to start with an apology but it turns out people do read these updates and noticed the glaring fact that I didn’t write one at the end of December, sorry! No excuses, life ran away with us and before I know it the tree was down, decorations packed away, the...
by Tim O'Grady | Dec 1, 2016 | Updates
It’s been an emotional month as there’s been lots of reminders that Toby is different, from spending his birthday in hospital, not going to friends’ birthday parties and an appointment to discuss his first wheelchair. Add in a higher than average number of seizures...
